Love That Mama Drama

Love That Mama Drama

Wednesday, March 31, 2010

Tired

Today is one of those days where I wish I could just be home resting on the couch. I am so unbelievably tired and I am feeling a case of the crankies because of my exhaustion. Layla started with a cold on Saturday. Nothing big, just the usual runny nose and congestion. By yesterday, she started to wheeze a bit and by last night, the poor kid could only sleep 10 -15 minute intervals because she was having trouble breathing and the wheezing had really picked up. She was so tired but just couldn't sleep because she was having a tough time breathing. By 4:30AM we ended up downstairs on the couch doing another breathing treatment. This worked for about 30 minutes and then the wheezing came back.

Needless to say, we just got back from the Pediatrician's. Her oxygen was running at only 92 / 93. They gave her an immediate dose of Prednisone and had us do another breathing treatment in the office. Upon hearing the pure hell we go through with her and the treatments, the doctor handed us an inhaler with a long cylinder to use instead. Praise the Lord! (Billy literally has to hold her down and causes red marks on her because she screams and tries to get free. The whole time she is begging for me to help her and it is pure torture. Nothing I say or do will calm her and at times I have to walk away so I don't cry. Yesterday, I literally put the vacuum cleaner on so I couldn't hear her begging for me to help her. That right there, is the WORST feeling in the world for me!) It is the longest 8 minutes of my life sometimes and I am grateful that we have this inhaler now. She will also have to go on Flovent on Sunday when she has her last dose of Prednisone and she will have to be on this through the season change. Once this episode calms down, the doctor would like to have her on Singulair as well. On top of this, she has an ear infection and will be on Zithromax for that. We will be back for a visit on Friday so that they can check her oxygen levels and make sure the meds are doing their job. Last but not least, the doctor strongly recommended us finding a new home for Leo the Lion Cat. How on earth am I going to do this for a cat that is 12 years old and has been with me since he was a baby? How can I not do it if it would help Layla? I am so confused. I had asked this question up in Boston to the Allergist and he told me not to worry, that even if we got rid of Leo, the pet dander would be around for years to come because you can never fully get rid of it. Who do I listen to? What do I do?

Moreover, we are trying to get her endoscopy scheduled to figure out the cause of her esophagus issues and I don't believe we will be able to do this for some time now until her breathing is better and this episode has calmed. There is no way I can put her under anesthesia with breathing issues and I don't believe they would even entertain the thought anyhow. So it looks like we will be putting that off for a bit longer.

Like Reanna, they cant diagnose Layla with asthma because these episodes would have to continue on for them to do so. This all started with the RSV and she could have flare ups for a year or not. She could still have issues in 3 years and she could have issues when she is 6. It is all on a wait and see basis at this point. (Not very comforting to me however!) I could kick myself in the A%& because had I not sent her to daycare, this would have never happened. I thought I was doing the right thing by socializing her one day a week with kids her age and instead, I exposed her to this. As if she needed something else to hinder her health. I feel fully responsible and I hate seeing her sick ALL THE TIME! How I wish I had made a different decision. How I wish I didn't have to watch her go through all of this. I pray that she will get better quickly and a few months down the road this will all be just a distant memory as she is building her sandcastles on the beach! For now, I am just looking forward to getting out of work and snuggling her tight on the couch!

My Hannah Funny: She got in the car from school the other day and said, "Mom, I did a kind deed today." I told her I thought that was great and asked her what she did. She told me that she bought her and her friend Nya a snack at lunch time. I told her that was very kind, but then asked her where she got the money to do so to which she replied, "Oh, I just told the lunch lady to add it to my check." HMMMMMM Thinking I better give the school secretary a call to find out how much Hannah's tab is over in lunch land!!!

I am posting a video of Layla from the other day. It truly cracks me up and I could watch it over and over again!


Monday, March 29, 2010

Long Island

The girls and I headed off to Long Island early Saturday morning for a visit with Uncle Dave and Auntie Jill.  We drove to New London and then took the ferry on over to Orient Point.  It's always easier for me to take the ferry over when I have the girls, espcially if I am by myself with them.  It gives them a break from the car ride and allows me to spend some quality time with them too.  They were excellent on the ride down and we got to Auntie Jill's around noon time.  We went to Hannah's favorite restaurant for lunch, Friendlys and by the end of lunch both girls were covered from head to toe in ice-cream and frozen yogurt.  We then headed over to a Sesame Street puppet show that was simply adorable!  The actual place was beyond adorable; decorated in a million different colors with anything you could think of hanging from the ceiling.  From butterflies to fancy chandeliers, it truly was magnificent.  Even Hannah thoroughly enjoyed herself.  I thought it was great to have some good old fashioned fun with the girls in the age of television and dvd's.  I am going to ask Billy to build a puppet theater for Hannah for her birthday.  Wouldn't that be fantastic?  I'll paint it all bright colors and it will be something all three children can enjoy playing with.  "The Murphy Family Puppet Theater"  Things like this truly excite me.

Saturday night we took the girls bowling.  Layla was literally all over the place.  She was beyond excited and containing her proved to be a difficult task.  She was falling down in the lane and running in front of our neighbor's lanes.  Yet, it was quite comical all the same.  She just got the biggest kick out of the whole ordeal.  Hannah loved bowling and really did exceptionally well for only her second time.  She most certainly has a competative nature about her and kept asking who was in the lead!  One game proved to be enough for all of us since we were starving by that point.  We ordered some take out and headed back to Uncle Dave's and Auntie Jill's to watch the much anticipated "Kid's Choice Awards".  Hannah has been speaking of these for at least a month now and she was literally glued to the television the entire time.  Poor Uncle Dave had to endure the frantic screams and yells over who her favorites were!

Sunday morning we took it easy while Hannah and Auntie Jill went to the bagel shop per Hannah's request.  (Insert my "She is her father's daughter" line here).  We then went to noontime Mass for Palm Sunday.  Unfortunately, Miss Layla woke up with a nasty cold and was quite unruly in Church.  The Church was extrememly crowded and there were no seats when we arrived.  I had to take several trips outside with her and even had to try and calm her by taking her to the car for a bit, but to no avail.  The poor bug just didnt feel well and there was nothing I could do.  I always feel so terrible when this happens because I feel like I have totally missed the whole purpose of Mass when I am unable to pay attention.  I know it happens and I know that I can only do the best that I can do.  I just always feel a bit guilty as if I didnt even attend Mass.  Thankfully, Hannah behaved herself and once Church was over we said our goodbyes to Auntie and Uncle and headed towards the Throgs for a quick visit with Ant Denise, Uncle Chris and the kids. 

As Murphy's Law would have it, we hit quite a bit of traffic and our commute to New Rochelle turned out to be a bit longer than expected.  The girls fared well however and actually behaved quite well despite the extended time we spent in the car.  We were thrilled to finally make it to Ant Denise's and Uncle Chris's house.  The girls were so happy to see the kids and play.  They always play so wonderful together and truly enjoy each other's company.  (Sigh)  If only we lived closer.  I can't believe how quickly the time flies by and how big Skylar, Finnley and Camden are getting.  Camden is about to be 2 in a few weeks!  Wait, wasn't he just born?  It was wonderful to sip on a cup of coffee and have the opportunity to talk with Denise.  I could have stayed on that couch for hours just chit chatting and catching up!  Our times together are so few and far between yet I am so fortunate and blessed to have her in my life. 

As always, she had been saving up some clothes for the ravioli.  I can't tell you how much I appreciate this!  Layla always ends up looking like the most adorable little bean and 9 times out of 10, the clothes are hand me downs!  Adorable ones to say the least.  We truly get so excited to look through the bags of clothes and see all the adorable girly girl clothes!  The shoes, the sneakers, the coats, the dresses!  They are so very much appreciated and I am so grateful.  She is actually wearing one of the dresses today and of course, I havent been able to pry the Twinkle Toe sneakers off of her feet!  I can't thank Denise enough for thinking of us and letting us have all these wonderful items. 

Today, Miss Layla is still not feeling herself.  She only has a low grade fever, so I am sure it is just a cold and nothing more.  How I wish those gummy vitamins would help the poor child out and keep her healthy for more than a few days at a time!  She is napping at the moment which is good since our plan is to go see the big guy with the floppy ears after picking Hannah up from school.  Layla is so excited to go see him and inform him that she would like some chocolate for Easter.  Auntie Mimi has found chocolate bars that dont have any dairy, nut or soy in them and to say that Layla has been enjoying them would be an understatement.  "Mommy, when is a the bunny gonna bring a me some chocolate?"  Can you blame the child?  So the bunny better be hopping on over to the health food store to put some in her basket!

I am going to try and figure out how to upload some video of our weekend to the blog tomorrow so stay tuned!

Friday, March 26, 2010

Spring, Spring, Where are you?

The girls and I got all ready and packed up for our day this morning and headed out the door, only to open the garage to find.. SNOW!  Yes, it was flurrying!  Hannah had a jean jacket on and Layla had her raincoat on!  Who knew?  Guess I should have watched the forecast last night!  We headed back in for our warmer coats and jumped in the car to begin our day.  I have been hearing that this weather is going to stick around for a little longer.  I was so hoping that Spring was here to stay and soon enough I could pull out my flip flops and sandals!  Looks like we will be waiting a bit more to feel that good ol' Spring air! 

I did survive Hannah's field trip on Wednesday.  She had a wonderful time and her teacher said that all of the kids were extremely well behaved which was nice to hear.  Hannah was very excited to tell me everything they learned and how good their pizza lunch was!  I was just happy to have her back in my arms safe and sound!  (Is it bad that I am secretly wishing that this is the last of the field trips for the year?)  After a quick snack and a change, I carted Hannah off to dance class.  All the while nervously checking my phone waiting for my sister to call.  Baby Reanna has had a few terrible weeks with high fevers and sickness and I knew Julie had an appointment at the pediatrician at 2:30.  When I hadn't heard anything by 5:00, I called.  (I am patient.. but not that patient and by this time I was a nervous wreck!)  Julie answered and informed me she was on her way to Hasboro with Reanna.  Apparently her oxygen level was dipping low and her Dr. was concerned.  I told her not to worry I would take care of whatever she needed.  My Mom had been staying with her for a few days while my Dad was out of town, so we fed the kids quickly and Billy darted off with Hannah to Math night with Grammy and Layla and I headed on over to pick up Nonnie and head to Auntie Paula's Arbonne evening.  I wish I could afford this skin care line because I so very much love Arbonne products and would buy them all if I could!

Billy got Hannah home and settled before we arrived home.  He said she did a wonderful job at Math night and Grammy even said that one of the principals remarked on how serious and intelligent she is.  (Gush)  Nonnie spent the night with us and the girls loved it.  A little too excited maybe, because they both woke up at 6AM the following morning excited to still have their Nonnie visiting.  

Miss Reanna ended up coming home yesterday afternoon and she is doing better.  Her chest XRays show cloudiness that they are unable to determine whether it is pneumonia or an asthma exacerbation.  She is on prednisone and antibiotic for the infection.  Her Dr. feels as though this was all brought on by the fact that she had that darn RSV the end of January.  Unfortunately now she will be susceptible to a lot more and they will have to watch every little cough and cold and take her in to check her oxygen levels at the hint of anything.  I sure hope she doesnt end up having asthma.  I know all too well how scary it can be and I remember it being traumatic for me at times when I was a child.  I can't imagine how it feels for an 18 month old, nevermind for a parent to have to watch.  I can still remember the panic in my mother's vouce as she would grab me and run to the bathroom and put the shower on hot so I could breath in the steam in order to be able to breath without gasping for air.  In order for the Dr.'s to diagnose Reanna with asthma, episodes like this would have to happen again.  I am praying they dont and that it is pneumonia which will be out of her system quickly!  Come on warmer weather.. get her soon so all these babies can get their health back!!!!! 

The girls and I are headed to Long Island this weekend to visit Auntie Jill and Uncle Dave.  We are all very excited for the visit.  Auntie Jill has some fun things planned for the girls and Uncle Dave came to the rescue in taping the "Kids Choice Awards" which Hannah was completely worried about missing!  She has asked every morning when she wakes up, "Is today the 27th?"  She is her father's daughter when it comes to TV!  On the way back, we are going to stop and visit Ant Denise, Uncle Chris and the kids.  It will be fun to see them again as the last time we saw them was August.  I am sure we will have a fantastic weekend and I am looking forward to our little girls adventure. 

Please keep Reanna in your prayers in hopes that she will have a speedy recovery and no more attacks like this one!

Wednesday, March 24, 2010

Where's my Pickle?

Last night was a productive sleep night for Miss Layla!  Both girls were asleep by 7:30 and Layla slept through until 5:30 AM!  Hannah on the other hand, had her first bout of sleepwalking!  About a half hour after putting her down, I heard her scream twice.  I ran upstairs and found her in my room with the light on and the bed was rustled.  She was just standing there.  I asked her twice what was wrong and she said nothing.  Then she ran past me to the bathroom, went, and ran back into her bed.  I layed down with her for a few minutes and within seconds she was sound asleep.  Upon asking her about the episode this morning, she had no recollection.  LOL  I hope she doesnt end up sleep walking the way I did when I was a kid!  My parents use to find me trying to get out the front door.  One time, I even mistook my brother's closet for the bathroom!  WHOOPSIE!


Today is Hannah's first field trip and to say that I am a wreck about it would be an understatement.  They are heading to the local Children's Museum.  The permission slip alone was enough to give me a heart attack stating all of these horrible things that "could" happen and that the school would not be responsible for.  Moreover, Hannah coming home from school yesterday saying that there were several children staying behind because their parents would not allow them to go did not ease my worry.  One in particular because he had gotten lost on a previous field trip (at a different school) for over four hours.  No, this story did not help ease any of my fears.  So needless to say, I probably freaked the kid out entirely last night by giving her a run down of all the safety rules.  To be sure to stay with a buddy at all times and have her teacher in sight.  Never wander off away from the class.  Keep your voice down on the bus so the bus driver can pay attention to the road and lastly, if anyone should grab her, to scream fire or stranger, kick, bite and do whatever she could to get away.  I know that I probably sound like a total freak but in this day and age you honestly can not be too careful.  Just turning on the news is enough to want to keep your children in bubbles for the rest of their lives.  I know I certainly can't keep her in a bubble (even though I really really want to) so I had to let her go and enjoy her day.  She was so very excited and I am sure she will be just fine and will be overjoyed to tell me about her day.  I wish I could have chaperoned, but unfortunately, too many parents wanted to, so they had to say no to all of the parents as to not cause problems.  So I will be breathing in and out until 3PM today when I go pick her up and she is safe and sound in my arms!


My Layla funny for the evening was last night when she was playing with Hannah's guitar.  She came up to me and asked me where her pickle was.  I made her repeat it twice because it was the cutest thing ever.  Then Billy made her repeat it.  What she wanted was the "pick" for the guitar.  She just says the funniest things!  Something else that she has said forever that I just melt when she says it, is "Mommy hold you!"  She says this when she wants to be held.  I just love it and I would never think of correcting her because it seriously melts my heart when she says it.  I hope she continues to say it for a long long time!

On another note, Mommy's feeling a little funky today.  I started feeling a bit "off" last night and thought maybe dinner just didnt agree with me.  Yet, this morning, I wasnt able to drink my usual one cup of coffee.  Now I am feeling a little feverish and my stomach is still off.  Hmmm I surely hope I am not catching a bug.  We have a marathon day today and there is just no time in the schedule for it!  :)  Hoping it passes quickly!


 

Monday, March 22, 2010

Happy Monday

Wow, I can't believe it is Monday already!  The weekends go by way too fast.  We did have a lovely weekend and the weather was definitely a huge help in that department.  We spent much of our weekend outdoors riding bikes and playing on the swingset.  We took walks and even had our first ice cream at CoolLicks (our favorite summer hot spot!)  The girls loved playing outside so much so that Layla refused her naps this weekend!  No way, she wanted to be outside with big sister Hannah! 

Speaking of Hannah Banana, I had a wonderful time going into her classroom on Friday and telling the class about our Family Business.  The kids were absolutely adorable and Hannah loved having me there.  She melted my heart!  I tried to think of interesting facts about the business that would keep them entertained.  One being the fact that the secret recipe of the 11 herbs and spices is locked safetly in a vault in Louisville, KY.  One little boy was simply enthralled and kept asking me questions such as, "Now say the Colonel had the recipe written down on a piece of paper on his desk and he had to leave to use the bathroom, and someone came in and stole the paper... that would be bad, right?"  I could have stolen him!  The children were extremely well behaved and they thoroughly enjoyed their mashed potatoes and crispy strips as well.  It was a pleasure to have volunteered!

Furthermore, we received Hannah's report card on Friday.  I was simply blown away.  She did such an unbelievable job I was in awe!  First semester she had mostly S's for Satisfactory and a few O's for Outstanding.  It was what I had expected since they can't give the kid all O's or what would they have to work up to?  This semester, she turned 7 of those S's into O's.  SEVEN!  I am so proud of her!  She is such a smart little booger with such a desire to learn.  Miss Geremia loves having her in class and I believe Miss Geremia has done such a wonderful job teaching her!  Han also got to take home the class Mascot this weekend, JT the stuffed Koala.  She had a fantastic time entertaining JT and keeping him with her at all times.  Last night she did a wonderful job writing a journal entry about all the neat things JT got to experience with her over the weekend.

Layla Grayce had a lovely weekend as well.  She had Billy and I in stitches often.  The things that come out of her mouth are just hysterical.  I wish I could just freeze her in time.  She is quite the disciplinarian and will reprimand anyone she hears saying or doing something wrong.  "DaDa dont you a say a bad word.  You freshie."  Everything has an extra "a" in it and she sounds like this little Italian baby!  Her facial expressions are priceless as well.  "Mommy where is a my socks?"  Healthwise she had a good weekend, until last night that is.  When we got home from Momma and Pa's last night she felt warm.  I checked her temp and low and behold, 101.  Granted it isnt high.  Yet, usually for Layla, anything 101 and over means something is going on.  She woke up this morning after a restless night of sleep with 99 and she seemed in good spirits.  However, after just feeling her head again, she is feeling quite warm to me.  I really wonder if her food allergies could have anything to do with these unexplained fevers, as of right now she has no other symptoms.  I remember that when she was an infant, she would often get unexplained fevers for several days and then they would just disappear.  She has had several blood tests and everything has checked out fine.  So as of today, I am back to keeping track of everything she eats.  I am determined to find a cause to all of this as tedius as the task might be.   

Last but not least, I have noticed this weekend that my belly is huge.  No, not huge, actually MASSIVE!  I really cant get over how big it is!  I swear I was this big when I delivered Layla.. a week late!  Even Billy was contemplating with me about how it could possibly get any bigger considering I still have over 2 months to go!  I am not complaining, because in all honesty, I think it is so neat!  I admired it a few times this weekend in the mirror thinking, "What are you little June Bug.. what are you?"  I still cant believe that I have survived not knowing the sex of this baby!  I just can't wait to meet him or her and embrace them into our family.. our soon to be family of five! 

Wednesday, March 17, 2010

Poor Ravioli

Just when you think you have it all figured out, all your theories get squashed!  Layla had another horrible night last night which leads me to believe that she may not have even injested the spoiled milk on Sunday.  She went to bed fine for me with no problems.  Hannah and she were sleeping soundly by 8PM.  Layla awoke around midnight and came into my room.  I picked her up and put her in bed with me.  She was fine for about minute or two and then all of a sudden the screams began.  The kicking began and the crawling out of her skin began.  I have to tell you that it is the worst feeling in the world because nothing I do, will console her.  If I try and hold her, she crawls out of her skin even more.  Moreover her kicks are so fierce that I am afraid she will kick my belly and harm the baby.  Walking the hallway would only work for a minute or two and then we were back to square one.  She wont let me rub her belly or her back and she screams louder if I try.  It is the worst feeling in the world to know that she is in pain and nothing I do will help ease it for her.  Through her screams she was saying, "belly" so I knew for sure it was belly pain.  So all I can do is sit there and cry with her feeling so helpless.  Every few minutes it would ease up and then it would start all over again.  By 2:30 AM I was able to calm her enough to put a Mickey Mouse movie in.  She was still uncomfortable but she had at least stopped the screaming.  By this time however, the poor kid was wide awake.  So it took watching the movie twice in order to get her to go back to sleep which wasnt til around 4AM.  Thankfully, she slept the rest of the morning without incident and didn't wake until 9AM this morning.  I called her GI doctor in Boston and thankfully received a return phone call by 8:30 this morning suggesting we up her med to twice a day.  (This is why I love Boston Childrens!)  Immediately I receive a response!  I am praying that this helps relieve her of the pain and will allow her a night of sound sleep.  Now I am really looking forward to her procedure which I am hoping will be scheduled no later than next month.  I just want this precious ravioli to feel better!  I want her to get a good night's sleep!  I want answers and I want to be able to make it all better for her!  I am so tired of feeling so helpless.  I pray that the endoscopy gives us answers and gives them to us in a reasonable amount of time!

On a lighter note, I have a Hannah funny.  She had come home from school on Monday saying that she needed a "Frankenstein" shirt to wear to school on Tuesday.  Puzzled, I asked her why.  She said he was coming to visit her school and again insisted that Daddy must have a Frankenstein shirt.  I assured her that Billy, indeed, did not have a Frankenstein shirt.  She then asked me to describe what Frankenstein looked like.  I went into my green faced, squared shouldered, tall, hunched over description and then noticed that her expression was puzzled.  I am not sure what happened but the conversation was dropped surely because I was distracted by something else and that was the end of it.  When I picked her up from school yesterday, she got in the car and said, "Oh Mom, It wasn't Frankenstein who came to visit, it was Alan Shawn Feinstein."  I tell you, I laughed so hard I cried.  Leave it to Hannah.  The child can make me laugh under any circumstance!

Happy St. Patrick's Day!

Monday, March 15, 2010

Long Night

It was a long night in the Murphy household last night.  Everything had been well throughout the weekend with the exception of Layla having a mild virus which had started on Thursday and that looked to have been so much better yesterday.  We went to Church in the morning and she really seemed fine all day.  She took her nap and everything.  Billy then read to both girls last night and put them down to bed.  For some reason Layla just wouldnt settle down.  She seemed as though she wanted to, but just couldnt get comfortable.  After an hour and a half of me constantly checking the monitor, we went up and got her.  We snuggled her on the couch and yet, she still couldnt seem to simmer down.  I finally went back upstairs with her and tried to soothe her to sleep.  It took a while, but finally, by 11:30, she was sound asleep.  By 2:00AM she was up screaming.  I mean SCREAMING!  I tried everything and nothing worked.  I walked the hall with her, I rocked her and I rubbed her back but she seemed to be very uncomfortable.  She kept kicking her legs and arching her back.  I tried to rummage through my head and remember what she had to eat during the day and I really couldnt come up with anything that could have bothered her belly so severely.  The only thing she did have was a teaspoon of Cool Whip, which she has had before and never reacted this way too.  Nothing would console her.  It was terrible!  Billy woke up and came upstairs and he too, tried everything.  Finally around 3:45 he headed downstairs with her and held her on the couch.  She fell alseep for about an hour and a half and then she was up again screaming.  I ran downstairs and just held her and rocked her.  Eventually I put Mickey Mouse on for her and after another 45 minutes I got her back to sleep. 

Today, she is just downright icky!  She is not screaming anymore but she is completely exhausted and rightfully so.  I am hoping that she is going to go down for me in a few minutes.  Even poor Hannah woke up a few times during the night and I felt so terrible waking her up to get her off to school today.  I know she must be exhausted and I am hoping she will take a little nap after school today.  Although thankfully she didnt give me an ounce of trouble and really woke up rather happy.

I dont know what to think as far as Layla is concerned, since it is still sometimes difficult for her to communicate with us what is wrong.  She is only 2 and one moment she can say her belly hurts and the next she says it doesnt.  I am wondering if this could even be part of the little virus she had or if it is a food related issue.  Whatever it is, I pray that she can just get some much needed rest tonight.  This has happened before during the night, but never to this degree and never for as long as it did last night.  So once again I am left pondering as to what could be wrong with the ravioli.  I have a call into her GI doctor in Boston to see if he can shed some light on the issue as well and thankfully we will have her scope appointment soon as well. 

So for now, my fingers are crossed that she is going to be snoozing soundly within the next 15 minutes.... and I cant promise I wont be curled up right along side of her!

************************
UPDATE:   After a long afternoon yesterday and another hour of Layla screaming and me crying, my mother in law called us to remind us of an incident that took place the everning before.  Sunday night we had gone to their house for dinner.  The kids went to play in the playroom while the adults finished eating.  Layla came out of the room with a cup that was not hers and it looked as though she had taken a drink of it (and who knows how many more before she had come out of the room).   I yelled for Billy to grab the cup because we had no idea what was in it, but knew it was not hers.  The verdict was spoiled milk from one of my nieces.  Not only is Layla allergic to milk, but day old spoiled milk must have done a number on her tummy!  No wonder why the poor kid was screaming in pain!  Aye Carumba!  She finally settled down around 9:30 last night and although she still woke 4 or 5 times, I was able to get her back down without a fuss and she didnt scream anymore.  So hopefully after a good night's sleep tonight, we will have her back to our bouncing baby Layla!  (Sigh)  Of all the things... sheesh!

Thursday, March 11, 2010

BCH Allergist

Today we had Layla's appointment up at Boston Children's Hospital with an allergist per Dr. Verhave's request.  (Her GI Dr.)  We met with Dr. Lee for the first time and he was wonderful.  We discussed all of Layla's history and he did some more skin testing on her.  If you remember previously Layla showes allergies to peanut, soy, milk and oats.  This time he also tested her for tree nuts and retested her for milk and soy.  The tree nut was positive and the milk and soy were fine.  However, he did say not to introduce milk or soy back into her diet because her reaction could be different than that of a skin test.  For example, when we give Layla ice cream, it's on those nights she is up all night with a belly ache.  Or when we have tried to re-introduce milk, she'll get a terrible bout of diarrhea and stomach cramps.  So for now we are staying away from these foods.  So pretty much the only new thing we have learned thus far is not only is Layla severely allergic to peanut, she is also allergic to tree nuts (walnut, almonds, etc..)

When speaking with Dr. Lee, I told him that our general rule of practice with Layla is that we will give her a product if the box says, "Manufactured in a facility that processes food with peanuts" and that we keep her away from food where the box will read, "May contain nuts, peanuts, etc.".  Much to my suprise, Dr. Lee said that although this was a reasonable assumption to make, that we were playing Russian Roulet with this assumption.  Apparently, through studies it is found that foods that say "Manufactured in a facility that processes food with peanuts"  have been known to have a higher concentration of peanut in them.  SCARY!  Some may have none at all and some may have a high concentration and you just dont and wont know which is which.  So from this point forward, we are to eliminate all foods that have anything or say anything at all about peanuts and tree nuts.  Tough part being that unless you have a child that has a nut allergy, you simply cannot imagine the number of foods that contain nuts!  Many times they are foods that you would never even think would contain nuts.  Jelly Beans for example!  She is only 2 and I am hoping that as she gets older this part will get easier for her and that we will find alternative foods for her so that she doesnt feel left out.  Especially since her big sister gets to eat everything!

Next on our agenda is to get her re-scoped as soon as possiblle to see if the esophogus irritation has improved.  If it has, then it will be a safe assumption that Layla's issues are due to reflux and keeping her on the prevacid will be the treatment.  If there is still irritation, then we are going to have to assume that the reflux is due to an allergy process and she will be diagnosed with EE (eosinophilic esophagitis).  If this is the case, then she will have to undergo an extensive amount of allergy testing to determine which food or foods are causing the allergic reaction in her esophogus.  I have heard that this can be a tedius task, but I have faith if this is the route we are headed in, then we will figure it out.

All of this being said, Layla is doing exceptionally well.  She has a few tough bouts with RSV and has had to be put on a nebulizer, but aside from that she is sleeping better and eating better and all in all just acting better.  At her last weight check, she had the biggest increase since she was a baby.  All of this wonderful news and we are so very grateful!  She ruled the roost today and got the attention of practically everyone in the hospital as she pranced around in her purple tu-tu.  This has come to be her daily attire as she will not leave home without it!  (She is 100% girly girl!)  She held up really well during the skin testing (much better than the previous time) and is currently napping peacefully on the couch! 

Thanks everyone for thinking of us!  All of our love and please continue to keep the Marsh family in your prayers!

Wednesday, March 10, 2010

Prayers for the Marsh Family

Layla Grace Marsh passed yesterday morning.  The first thing I did was thank the Lord for bringing her home so that she no longer had to suffer and then I cried.  Losing a child is by far the worst nightmare a parent could ever endure.  Losing a child and watching them suffer has got to be an unfathomable pain.  May the Marsh family find peace during this unimaginable time as they will all be in my continued prayers...


Monday, March 8, 2010

Sunshine

Well this weather has just been wonderful!  It feels so good to have the sun shining on my face again and it seems as though it has been ions since we have seen it.  The warm temperatures are enough to put anybody in a good mood!  The girls and I had a wonderful weekend and we are hoping that this warm weather is here to stay as we are looking forward to many more weekends full of fun.

Saturday evening we had a wonderful time with my good ol' girls from SHS and their families.  It feels like it has been forever since we have all been together.  Sara was surely missed and I hope that we will be able to schedule a visit with her soon.  The kids had a wonderful time playing together and it was so very sweet to see them running all around the house.  The older ones loving on the little ones and the little ones looking up to the older girls.  All of the kids were so well behaved and got along famously.  It was so nice to see everyone and catch up and of course my high school girls looked as beautiful as ever!

Sunday, I was originally supposed to attend a bridal shower, however Billy got called into work at the very last minute so I had to rearrange the day so to speak.  Hannah had a birthday party to attend which Billy was going to take both girls to.  I had called the parents and asked if it would be okay if Layla tagged along and they were so very sweet about it.  Well, last minute changes and there wasnt much I could do since I had no one to watch them or bring them, so I had to call and let the bride's family know I wouldnt be able to attend the shower.  I felt like a schmuck, but what could I do?   So after a quick visit from Auntie Jill (and a bag full of St. Patricks Day treats), the girls and I headed off the Chucky Cheese!  They were both very well behaved and they had a wonderful time.  When we got home, we took advantage of the gorgeous weather and headed to the park to meet my friend Sarah and her family.  Sarah makes beautiful vintage dresses for little girls and sells the adorable hats and headbands my girls are always wearing.  You can find her adorable clothing at http://chacha4her.com/.  So I took some pictures of the girls hamming it up in the park with their western style vintage dresses.  They were so darn adorable I could have ate them up right there! 

Last night Layla slept a full night again.  I really cant get over it!  I have changed nothing at all and yet, she somehow just decided she was going to sleep through the night!  It is such a strange feeling as I am so use to her needed her cuddles at all hours of the night.  Yet, I am truly grateful because I feel as though she is just feeling better all around and maybe this is why she is able to sleep better.  She will still have nights of belly pain here and there, but this was the 3rd night of the week that she had slept through so there is no complaining on my end!  She really is such a sweet little girl.  She is always so concerned about others and always using her manners.  Everything is "Yes, Mommy" and "Sorry, Mommy" and she will apologize when it is not even necessary.  Or "No worry Mommy, I clean it."  She just exudes sweetness and it is so hard not to smother her with kisses and hugs 24/7.  Thank God she allows me to do so 99% of the time!  Of course she does need to learn how to share, but then again, this is normal behavior for her age.  I just adore the fact that she is a Mama's girl and I hope that she remains this lovable forever!  I have more fun just conversing with her and playing.  She has such a zest to learn new things and to make me laugh. 

Hannah is doing wonderfully as well and I was so happy that she behaved herself and used her manners at the party.  She is just a ball of energy and wants to be running around in the thick of things at all times.  Where the action is, there is Hannah.. and most times, it is she that is creating the action! LOL  She doesnt care who she is with, she just wants to have fun.  She gets along just as well with the boys as she does the girls and sometimes I think she prefers being with the boys and playing like a tomboy.  She is so intelligent and is starting to read.  I am so impressed with her skills and we have been working really hard together to keep up on her vocabulary and reading skills.  The girl has an appetite like a horse!  I cant believe how much she can consume on a daily basis, but then again she burns it off in a second since she is so active!  I am looking forward to her having the nice weather to play outside in so that she doesnt rely so heavily on the darn TV.  She is addicted and I have been trying to curb it because it doesnt quite sit well with me.  Although I will say the child also loves to draw, write, create, cut.. anything to do with paper, scissors and a pen and she could sit for hours creating masterpieces! 

My heart is still so heavy for the Marsh family as they are enduring every parent's worst nightmare.  I can't go long without constantly thinking about them and little Layla.   I ask again that you please keep them in your prayers.  You can read the updates on www.laylagrace.org.  This story has just touched me so deeply and I swear it has changed my life.  Layla wont die in vain.  She has touched so many people it is beyond belief.  I pray that their family finds peace in such an unfathomable time. 

Thursday, March 4, 2010

SLEEP!

What an exciting morning in the Murphy household!  Miss Layla Grayce slept the ENTIRE night!  YES she did!  She went right down at 7:30pm last night and Mommy actually had to wake her at 7:30 this morning!  I was so excited I was doing the Happy Dance in their room this morning!  Hannah through groggy eyes thought I had lost my mind!  I can honestly count on one hand the amount of time the ravioli has slept through the night, so this to me was a huge accomplishment!

To make our morning even better, Layla decided to eat an entire banana!  Layla has never, ever liked fruit.  I can't tell you how many times I have attempted to get her to eat a banana, strawberry or blueberry and she refuses or will take a bite and spit it out.  This morning she decided.. she liked bananas! 

I honestly think she is feeling so much better and so much more like herself.  She had a relapse of the RSV and we spent 2 hours at the Pediatrician this Monday getting her squared away.  Antibiotic for the double ear infection and we are also the proud new parents of a nebulizer.  That my friends, is not fun.  She has a really tough time with it, as do I and she cries through most of it.  Yet, I can surely see it helping her.  Billy actually does a better job with it as he has been home with her this week.  She couldnt have gotten my red hair.. nope.. she'll end up with my asthma.  Although I am keeping my fingers crossed that this is just an isolated instance pertaining to the RSV.  On any account, my sweet Layla baby is back to herself and then some and I couldn't be happier!

Wednesday, March 3, 2010

I am so blessed, I am so blessed, I am so blessed.  I thank the Lord above for the two most wonderful gifts he has given me.  My two girls are just simply the most precious gifts I could ever have been given and I am so very grateful for this 3rd miracle on the way.  Just when I think things were looking so down, I get such a reality check. 

The whole reason I started this blog was to keep a diary of all of my girl's moments and experiences.  I was inspired by a mother who also had been doing this for her girls.  When I was pregnant for Layla, I originally loved the name Lily.  I googled both Hannah and Lily to see how nicely they went together and this mother's blog came up.  I started following her blog loving all of the little moments she spent with her girls.  Unfortunately her life took a terrible turn when her Hannah who was 5 1/2 at the time passed away in July of 2007.  I think I cried for nearly a week reading this poor women's posts about how she was dealing with losing one of her precious girls.  I couldnt imagine being in her shoes and I remember then realizing how very fortunate I was to have my Hannah to love and to hold.  I still continue to follow her blog today.

A few days ago I came across another blog in the oddest of ways.  Anyone who knows the story of Layla's name, knows that when I was pregnant for her I secretly wished for another little girl so that Hannah would know what it was like to have a sister as I did.  So before I even knew she was going to be a girl, I would surf the net looking for purple shabby chic bedding for the crib.  One morning, LaylaGrayce.com came up in my search and I fell in love with the name (as well as a bedding set from the site!).  I was hooked and Billy made me squirm for the name for 8 long months until he finally agreed.  So yes, my Layla was named after a website, but I truly dont care!  I think the name is just so lovely and classic and it fits her to a tee!  Long story short I came upon this blog the other day, www.LaylaGrace.org.  Ironically enough, this Layla Grace is a mere month younger than my own.  All the similarities except one big difference.  This Layla is fighting for her life.  A healthy child until the age of 16 months, her life took such a drastic turn when she was diagnosed with neuroblastoma.  Today, Layla is in the final stages and her family has taken her home to pass.  I cant even begin to imagine what it must be like to walk a step in her parents shoes.  Moreover all of the suffering this dear child has been through.  I can't stop thinking about this family and the gutwrenching heartache they are enduring.  Please, I ask you to keep them in your prayers and just pray for a miracle.  Miracles do happen and the power of prayer is truly remarkable.  I learned this when things were at their worst with my Hannah.

So here I sit, feeling like the luckiest, most blessed person on the planet to be able to have and hold my Hannah and my Layla Grayce.  I swear it has given me a whole new perspective on life.  It makes me want to soak up every little second with them even more.  You never know what tomorrow may bring.  Embrace today and cherish it as if it is the last.  Live your life with no regrets.  Live, love and laugh.  Tomorrow is never promised and never, ever go a day without telling the people in your life that you love them.